CTSC COPD Gene Project, BWH

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Sent by Ron Kikinis, James Ross at Surgical Planning and Channing labs made contact for a potential data management project based on XNAT. James Ross and Raúl San José Estépar have met with Randy Gollub and Dan Marcus before.

Data

The COPD (chronic obstructive pulmonary disease) Gene project is a five year research study being conducted by a group of doctors and scientists throughout the United States. The scope of the project is quite large, with a patient recruitment goal of 10,000 over five years (approximately 3,000 currently). Data includes:

  • CT scans used to phenotype the disease
  • Genetic information
  • Various derived data files (either additional, filtered datasets or summary statistics files in Excell) produced by a CT image-processing chain.

Data Management

There is currently no automated systematic mechanism for data transfer and data management. CT data was received on a hard disk drive and then transferred to local computers.

Both James Ross and Raúl San José focus on image analysis. However they have the necessary training and willingness to take over a developed XNAT installation. They'd need help on developing customized data model (XML schema) and consultation on jump starting the project.